01/10/2026
Yesterday was a milestone I did not know I would be so proud of: taking “Sabrina” (my new Xpresso line rollator walker made by Evolution 😂) out for a grocery and necessities run. 🛒✨
I’m being real with you guys: life looks a lot different lately. Between navigating a new Functional Neurological Disorder (FND) prognosis and essentially hitting the “restart” button on my finances and personal life, “overwhelmed” is an understatement. Huge shoutout to the local community services that provided gift cards to help me get the necessities. Starting over financially while managing a complex health condition is the “elephant in the room” I’m choosing to address head-on. It’s hard, but I’m not out of the race. My current “office” is a rotation of specialists that feels like a full-time job.
The “Care Team” Rotation: 🩺
• Family Doctor 📋
• Neurologist 🧠
• Rheumatologist 🦴
• Respirologist 🫁
• Hematologist 🩸
• Cardiologist ❤️
• Psychiatrist & Psychologist 🫂
• Physiotherapist 👟
• Chiropractor 👐
• Massage Therapist (RMT) ✨
Living with a FND prognosis for me means dealing with cataplexy, dystaria, absent seizures, and chronic pain daily. The reality of this prognosis is that outpatient care is exhausting. I probably legit forgot someone on that list, and that’s the wild part! 😅 But learning more about it helps me get control over it and find the right treatment protocol for me.
I’m not scared of the road ahead. I’ve navigated the loss of friendships, family shifts, and a legal separation just to get to this point of healing. I’m finding my community in FND support groups and rediscovering my passion for business. I believe that I am strong enough to handle all of this.
I’m taking my rehabilitation journey one day at a time, but I think I might overcome this, y’all. 💪🏽✨ Please keep checking in on me occasionally and letting me know what is happening in the community. Every time you do, it reminds me I am not alone or forgotten and that this community has my back as I venture back towards it! 💖l