03/10/2026
Today is World Ostomy Day. I’m curious and excited to see which of Edinburghs great sites will illuminate purple this evening to honour the occasion. Might have to take a wee drive by the Castle and the Royal Yacht Britannia.
Coincidentally last evening illustrates why this is important:
I went swimming as usual yesterday at David Lloyd’s. I should preface this story with, whilst they do have disabled showers for wheelchair users, they do not have any changing rooms rooms from those with non visible disabilities such as those with a stoma. We could use the baby changing room but there is only one in the locker room as it is and it’s always in use mainly I might add by not by those with children or disabilities. It’s really a non option 90% of the time. That said, even if they did have one it’s unlikely I’d really use it. I’m proud of my stoma Eduardo. He works hard to save my life every single day. I consider him a gift, the gift of life and my super power. I refuse, absolutely refuse to ever feel ashamed or embarrassed of having a stoma.
Sometimes this is what living with a stoma is like:
Yesterday, after swimming, I’m in the changing room changing back into my clothes. A mother has arrived with her 2 boys aged if I had to guess maybe 5 and 7 years old respectively. She chose to sit next to me and start to get the boys ready. Now they are children so yes, of course they will stare at my colostomy bag. I’m used to it. I leave it to their mother whether she wishes to explain to them what it is. Mostly the mothers admonish their child for staring which is only natural and I’m quick to put her at ease and tell her I’m fine with it and if she’d like me to explain to them what it is and what it does I’d be happy to oblige. This particular mother however upon noticing her boys staring started in on me. She used phases about how I should be ashamed of myself for getting changed out in the open with “that thing” on me. How it’s unfair to her kids and scaring them.
I will of course never apologise for my wonderful Eduardo. I assured her I was not ashamed at all and that I would encourage her to explain to her sons what a stoma is and why one might need a colostomy so that they may consider growing up to be come surgeons themselves whom help others in my position. Plant the seed now about how marvellous a solution it is to such a deadly condition. And God forbid either of them or indeed herself ever have need of one they shall be better informed and less afraid.
Of course she will do none of these things but it’s a shame.
World Ostomy does just that though. It helps raise awareness to inform people of something not so usually discussed.
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