05/06/2026
If you watch the entirety of this video well done! But if you want the show highlights strap in….
I’m not ok, there I said it! The “one foot in front of the other” mantra isn’t working right now.
For those of you who know me know that my plate is kinda full, actually no let’s be bloody honest my plate is overflowing!! I put on a really good “I’ve got this” face but sometimes it gets to be a bit much.
Living a life with children with complex medical needs, who are on the spectrum can be challenging, they themselves are not challenging, I want to make that abundantly clear, the world isn’t set up for them the thrive and that’s where the challenge lies.
We have been let down with the sale of our house, and we have had an offer accepted on our forever home, this home ticks every box we need it to, Callum can live out his days independently supported, the girls can have the space they so desperately need to thrive. And my partner and I might actually relax, maybe just a wee bit.
For 17 years my life had been hospitals, appointments, clinics, therapies and work. And I wouldn’t want it any other way, I’m so lucky to get to be the kind of parent I need to be, but that comes at a cost to me.
So I’m not doing too well right now, I’m exhausted and stressed and in need of things to go my way for a change…. So im listening to my body and I’m slowing down.
FTLOY will run exactly the same as it is now, but I won’t be as present, (ill still be here of course I’m not running away) I’ll be more mindful of my health and Jen will step up…. We are going nowhere, but for once in my life I need to just be!
So all I ask is be patient, things might take a little longer, but the squish will still be stunning of course.
Lisa xx
