05/11/2026
Happy Ehlers-Danlos and Mental Health month! This is my time to shine! ✨
While I may be turning 39 in 2 days, my spine resembles that of a 70 year old and now my hips have arthritis too! They said it was all downhill after 30… but this is ridiculous 🤣
Hypermobile Ehlers-Danlos syndrome (hEDS) is a heritable connective tissue disorder characterized by joint hypermobility, joint instability (dislocations), and chronic pain. It affects the entire body, but so far the majority of my symptoms are spine related! I’m lucky we have health insurance, and that I’m able to attend physical therapy. I’m also lucky to have the audacity to advocate for myself, and a family that puts up with me.
Expect some fun chronic illness stickers over the next few months as I continue to explore both medicine and art! The summer will be full of hard work, whimsy and relaxing!
What do you want to see next? Drop some inspo ideas in the comments!